One of the most famous children with progeria was Sam Berns. Sam was born on October 23, 1996, and he was diagnosed with progeria at the age of two. Despite the challenges posed by the condition, Sam became well-known for his positive attitude and determination to live life to the fullest.
Sam’s story gained international attention through the HBO documentary “Life According to Sam,” which chronicled his life and his family’s efforts to find a cure for progeria. Sam also gave a TEDx talk titled “My Philosophy for a Happy Life,” in which he shared his insights on happiness and overcoming adversity.
Tragically, Sam passed away on January 10, 2014, at the age of 17. However, his legacy continues to inspire many and raise awareness about progeria. His parents, Dr. Leslie Gordon and Dr. Scott Berns, founded The Progeria Research Foundation, a non-profit organization dedicated to finding treatments and a cure for the condition.
